BEN FANCHER’S FINAL EXAM ESSAY BECAUSE THIS WEBSITE WON’T LET HIM LOG IN FOR SOME REASON. ASK AMANDA. WE’VE BEEN TRYING FOR THE PAST 41 MINUTES. :(

Ben Fancher

Dr. Foss

ENG 384

5/2/19

            In Mary Shelley’s Frankenstein, a doctor, Victor Frankenstein, figures out how to reanimate the dead in a process that is never really explained to the readers. To test his theories, he creates a Creation who is compiled of the body parts of several different corpses. To Victor’s surprise, the Creation turns out to be not as attractive as he thought, despite being made out of random people’s body parts and Victor, not getting the child he expected, runs away and completely abandons his Creation and the closest thing he ever gets to a child. Victor fears the Creation and completely neglects raising him, just because the life Victor created turned out to be different from him. In Mary Shelley’s Frankenstein,the Creation’s experience in the world is the same as that of many autistic children; they exist in a world that doesn’t know how to interact with them, and they have parents that don’t know how to raise them and might even feel like they were denied the child they deserved. 

            In Jim Sinclair’s “Don’t Mourn for Us”, there is a section entitled “Autism is not death”, in which Sinclair talks about the fact that the birth of an autistic child is not the death of a non-autistic child, since the child was never not going to be autistic. Parents grieve because they feel they were somehow denied a “normal” child. Sinclair says it best when he says “Much of the grieving parents do is over the non-occurrence of the expected relationship with an expected normal child” (Sinclair). Victor’s interactions with the Creation after he brings him to life show a parent struggling with the birth (I know the Creation was built, not born, but it’s still the creation of a child, so hush) of a child that they were expecting to be born different than the way they were. That is, they were expecting their child to be the same as them. Frankenstein says in chapter five that he “had selected his features as beautiful. Beautiful!” (Shelley, 43) Frankenstein had intended for his Creation to be beautiful, tall, and strong. The Creation turned out tall and strong, but Frankenstein was horrified by his appearance. He had worked himself up imagining the perfect creation; and he had made himself believe that his creation would be just like him, perfectly alike in body and mind and soul. What he got was not what he expected to get, but what he got wasn’t any sort of monster or alien, as Sinclair would say. Frankenstein succeeded in making something that is made of more human than any one human being on the planet. The Creation stands on two legs. He has hair, two eyes, two ears, a nose, and a mouth. He’s very, extremely, ridiculously muscular, but so is Captain America, and we all love him. We also know that the Creation has an amazing capacity to learn, as demonstrated in chapters 11-16, where he learns an entire language and several things about what it is to be a human being.  And yet, upon seeing the Creation in its finished form, Frankenstein says that “the beauty of the dream vanished, and breathless horror and disgust filled my heart” (Shelley 43). Frankenstein’s dream was that of a perfect creation. He wanted to defy death and create a perfect human being. He expected that perfect human being, but he didn’t get it.

At this point, what Sinclair says that Frankenstein should’ve done was said to himself “This is not the child that I expected and planned for” (Sinclair). After saying this, Frankenstein should’ve taken time to grieve in PRIVATE, meaning NOT directly in the FACE of his creation, and then gone back to his creation and said to himself that, while this “child” is different from the one that he wanted, it is still deserving of care and attention, and since the “child” doesn’t have anyone like him to give him that care and attention, it’s Frankenstein’s job to take care of him. This is what Sinclair says that parents of autistic children need to realize. It’s what Frankenstein needed to realize. Yes, the Creation is different from you, obviously. He’s the size of LeBron James, he has yellow skin, and he’s scary looking, but he isn’t a monster. He’s just a challenge. The challenge is the same as raising an autistic child, since Victor would be raising a child that is different from the one he expected, and is different from him, but for a man who figured out how to combine parts of dead humans into one living one, it should’ve been a challenge well worth the effort. 

In DJ Savarese’s “Communicate with Me”, Savarese writes about the struggles his classmates have with trying to communicate with him. DJ himself isn’t the problem, but his classmates say that they aren’t sure how to talk to him. DJ uses a facilitator to help him communicate, and when people see that, they don’t know whether to talk to the interpreter or to DJ. Or they see that DJ is autistic, and they don’t know how to deal with that either. His classmates don’t know that DJ sometimes needs to be signed at to communicate, since sometimes his hearing shuts down. Or they don’t know that he sometimes loses control of his body, resulting in his reaching out towards whoever he is talking to. People would easily be able to communicate with DJ, but they just don’t know the rules, or they don’t know that the rules even exist. 

People don’t know how to interact with the Creation as well. They see that he’s a yellow skinned, unattractive, seven-foot-tall, muscular person, and they immediately start using words like “monster” and “ugly” and “ogre” for some reason. Victor’s brother, William, used all of these words to refer to the Creation all within the same breath which is, for one thing, very rude, but also, doing this means that he broke one of the rules of interaction with the Creation. The Creation is very much aware that the reason Victor abandoned him is that he thought he was horrifyingly hideous, having read as such from the notes he stole from Victor’s lab (Shelley 112). This makes the Creation particularly sensitive to any insult to his appearance, so calling him things like “monster” and “ogre” will result in…strangulation. People see the Creation and all they see is a giant scary monster, but they don’t see that he’s really just a human being. The only person that didn’t react with fear or yell at him or try to cause him harm was the blind man in chapter 15, and they had a very pleasant conversation, which shows that the only reason that the Creation doesn’t have more pleasant conversations is that most people see him and they don’t see someone to have a conversation with. They see someone to run away from or shoot at. They don’t understand that it isn’t difficult to have interact with this person, because they don’t try to learn how to interact with this person. But if they tried, they would discover an individual with a kind heart and a sharp mind, who is ready and desperate to share themselves with the world. 

The Creation in Mary Shelley’s Frankensteinis not the child who Victor Frankenstein wanted, but he is the child who Victor got. He is equally deserving of love and happiness and care as a Creation with a beautiful, perfect face and amazing flawless skin. The challenges of having to raise the Creation are obvious, but they in no way mean that the Creation is some sort of monster who is impossible to raise. There is obviously a challenge in raising the Creation, and there is a challenge in raising autistic children. They might not be the children that their parents wanted, but they’re the children they got. They might seem hard to interact with, but you just need to learn how to do so. It’s a challenge, but it’s one worth undertaking. The happiness and success of a human life is something too valuable to decide to give up on, just because it’s a life too different from your own. 

Word Count: 1375

Works Cited

Savarese, DJ. “Communicate with Me.” Disability Studies Quarterly, 2010, www.dsq-sds.org/article/view/1051/1237.

Shelley, Mary. Frankenstein. Electronic Text Center. University of Virginia Library. https://web.archive.org/web/20110206045402/http://etext.lib.virginia.edu/toc/modeng/public/SheFran.html

Sinclair, Jim. “Don’t Mourn For Us.” Our Voice,vol. 1, 1993.

Amanda Smith’s Final Exam Essay

https://docs.google.com/document/d/1Gem96mYhtUxcBfnNYLzSAJDa_3kYmAEUPNSC0mW3b_8/edit?usp=sharing

(Link is pdf version of paper)

Amanda Smith

ENGL 384

Foss

April 20, 2019

Autistics as Advocates

Autism is often misconceived as a disease that inhibits a person beyond belief. A person that cannot communicate, cannot read social cues, cannot have emotion, cannot be imaginative, and cannot behave normally according to society’s standards. Majority of non-disabled “ablest” people continue to perceive the autistic individual with this misleading view of incompetence as if autism is something of a great tragedy based on the written accounts and experience of ablest. Fortunately, autistic individuals are breaking these bounds made by the ablest with self-advocacy. Making their voices heard and known, more and more autistic people are beginning to publish their own words, emotions, experiences, and views as an individual with Autism. Recent publications by authors with autism spectrum disorder (ASD) are showing the world that they and other autistic individuals cannot be defined by the doctor’s prescribed diagnoses or ablest views. Looking at written works by authors D.J. Savarese, Rajarshi Mukhopadhyay, and Craig Romkema it can be seen that these stigmatized characteristics of autistic individuals are not correct. These autistic writers speak up and prove to their audience that they do have emotions, can illustrate a new and unique point of view as a person with this disability, and describe their thoughts and behaviors with imagination and intellect despite the views and labels given to them by the able-bodied society.

Abandoned by his birth parents and presumed incompetent at an early age, David James (D.J.) Savarese found not only a loving family to adopt him but also a life in which he could communicate through a text-to-voice synthesizer. As he makes his way through his education in public schools and faces society’s obstacles of inclusion. Through the determination of fighting society’s standards, D.J. creates his voice through poetry. When D.J writes poetry he explains that “poetry is autistic: it revels in patterned sound. For me, poetry is more natural than spoken language, maybe because I spent so many years hearing it without comprehension” (Savarese, “Poetry”). Throughout his writing, in high-school, he had been working on comprehension of material, one of which was through a poem called “Alaska”.

The poem’s topic was supposed to be about The Iditarod Trail Sled Dog Race, but D.J. took the poem into a different direction of self-advocating. He states, “icebergs hear the cries of the hurt/just like they’re trying really, really to be free” (Savarese lines 1-2). These lines can be interpreted as imaginary illustration of society’s exclusion of D.J. pressing on him, and D.J is calling out, wanting those in his society to listen to him and communicate with him. He personifies society as the cold icebergs and the “hurt” as himself. His dad analyzes D.J’s work and agrees, saying he’s “stag[ing] the problem of separation as one confronting the natural world” (Savarese 279). He is telling society to communicate with him and not be afraid to.

Further, into the poem, D.J shows how his text-to-voice facilitator helping him communicate by saying, “branches they try to yearn freedom but they fear it/trying to get freed points out their great/hurt yearning long, long branches that live” (Savarese lines 6-8). Once again, D.J. is the  “hurt” as a nonverbal autistic individual who has the means to communicate. The branches encapsulate the idea of his facilitator giving him the ability to reach out and connect or socialize with people in society, but they fear it, as he puts it. D.J’s words represent the idea that even though nonverbal autistics cannot talk with their vocals, they have the ability to communicate and hold a conversation by other means. His poem holds a deep emotional meaning with words such as “yearning” (Savarese line 8) and “cries” (Savarese line 2). D.J. has the means to hold emotional, intelligent, and even poetic conversations despite what non-verbal autistics have been labeled as (don’t know how to connect with others, lack of emotions). Through his poetry, D.J demonstrates that he is not defined by his diagnosis and becomes a leading advocate on behalf of other non-speaking autistics. Similar to D.J’s another young poet, Tito Rajarshi Mukhopadhyay, tries to connect with society through his poetry.

At the age of three, Tito Rajarshi Mukhopadhyay was diagnosed with what the medical community would describe as severe or low-functioning autism, a nonverbal communicator. He grew up in India and came to America with his mother, who taught him his reading and writing skills. During his developments in reading and writing, Tito began his writing journey and wrote a series of five poems, one of these in particular called, “Misfit”.

The poem, “Misfit”  is set outdoors in a peaceful environment where men, women, and birds reside, where the earth is “turning and turning/The stars receded, as if/Finding no wrong with anything” (Mukhopadhyay lines 1-3). The narrator, Tito, places himself into this setting and describes his actions with the world around him. Tito says, “Birds flew by all morning/The sky lit/From the earth’s turning and turning/My hands, as usual, were flapping/The birds knew I was Autistic/They found no wrong with anything” (Mukhopadhyay lines 4-9). It can be interpreted that in this section of the poem, Tito is describing his ‘flapping’ as a way of interacting with the birds or expressing his emotions in his own interpretive way. The birds see this and know he is who he is, and see no wrong with his expressions. This is how society should be treating Tito, but instead, they gawking him.

In the lines, “Men and women stared at my nodding/They labeled me a Misfit/(A Misfit turning and turning)” (Mukhopadhyay lines 10-12) The men and women in this section are the society Tito (or autistic people in general) deal with daily. The people are the ones who smack this label of ‘misfit’ onto him while staring at the abnormality of his expression. Tito faces this maltreatment and begins to feel isolated and exclusion as he calls himself a ‘misfit’. By putting the accepting view of the birds first, and the men and women’s reactions last, the next lines become Tito’s self-advocacy.

Tito reflects on what he has just realized and witnessed. He says, “ I found no wrong with anything/Somewhere a wish was rising/Perhaps from between my laughing lips/Why stop turning and turning/When right can be found with everything” (Mukhopadhyay lines 15-19). Here Tito is recognizing the ill behavior of society, but wishing and hoping that people will finally realize there is nothing wrong with the way he and other autistics expresses themselves. The rightness he is talking about is that he is dissimilar from the normalcy that society compares him too. But he is a person too, who is intelligent and can speak for himself. In this poem, Tito is indicating that he is not someone to be excluded, he lives and communicates in the world just as anyone else, and society can find the rightness in this. Just like Tito, Craig Romkema shares his thoughts on the labels he had been identified by.

Craig Romkema had developed a cerebral palsy and movement disorder that made fast typing difficult. He also had sensitivities to sound and light and according to his words, a tendency to act more autistic under stress. He knew that I had great challenges ahead of him as he goes to high school and college (Authors 2011). Through Romkema’s journey through his high school and college career, he faces many opinions, labels, and diagnoses. Through self-reflection, Romkema writes a poem called “Perspectives” talking about what able-bodied people have diagnosed and labels him as. At the beginning of his poem, he is in his room doing nothing but “watching the fluttering/of a pen between my incessant fingers” (Romkema lines 1-3). As he watches himself do action, he recalls what others might have labeled his pen fluttering:

Self-stimulation, some experts call this,

Eastern mystics might call it meditating,

Psychologists used to blame it

On “refrigerator mothers”

Optometrists prescribe special exercises and glasses,

Researchers recommend vitamin A.

From the beginnings of my differentness, I remember

Doctors, students, therapists

Measuring my head,

The tightness of my muscles,

The tracking of my eyes,

The dysfunctions of my stomach (Romkema lines 4-15).

Romkema has had every medical and personal opinion about the way he acts and how they relate to his autism. From what he sees as a normal flicking of the pens between his fingers, what any ablest may consider normal if it were not for his disability, he finds that all his interaction with society has been about labeling him and fixing his ‘differentness’. These lines indicate that the narrator is fully aware of what people are saying; that “others not acknowledging I understood every word” (Romkema line 18). The people believe that he needs to be fixed with vitamins and special exercises. They treat him like an experiment rather than a person as they measure and track the functions of his body. The relationships he has encountered have all been uncompassionate; as a condition rather than a human. Even with his parents, they treated him as if he wasn’t a person, he says that “somehow we would find each other/Connect/The way they could with the sisters and brother/Following me” (Romkema lines 28-31). Nevertheless, Romkema advocates for himself as he describes his experiences and views as an autistic man.

In the next few lines he states, “ I am not only subject/but researcher/Giving valuable feedback/On treatment results/Sharing the inside view/Learning from the outside” (Romkema lines 38-43 ) and also saying that, “now I can type thoughts, questions/Responses/Enter discussions on Shakespeare and/Algebra/Vote, give opinions on government actions/Now my mind is free, is free” (Romkema lines 46-51). He is telling society and the people around him that he is able to communicate, learn, discuss, and give back. He is not defined by his labels given to him from his disability and knows he can be just as capable as any member of society. Now he’s contributed, and self-advocating for himself and contributing to research and his studies. By writing this poem Romkema takes on the role of an advocate for all autistics facing over-diagnosing.

Autism is not a fatal condition and society cannot judge autistics capabilities and capacity for self-insight despite what the doctor’s prescribed diagnoses or ablest views say. D.J. Savarese, Rajarshi Mukhopadhyay, and Craig Romkema’s poems give a voice to autistic individuals that are dealing with the able-bodied repression. By creating these poems, they show that they and others have emotional thoughts and experiences and are able to communicate these intellectual and poetic ways. Not only do they give a voice, but they call out society to tell them that they can communicate, they can hear what is being said about them, and they want to say it’s not true, and they want to be heard.

Works Cited

Savarese, D.J. “Poetry.” Deej, www.deejmovie.com/poetry/.

Savarese. D.J. “Alaska” dis/lit 19, 27 April 2019, http://courses.chris-foss.net/dislit19/wp-content/uploads/2019/04/djs-1.pdf

Mukhopadhyay, Tito Rajarshi. “Five Poems.” Disability Studies Quarterly, dsq-sds.org/article/view/1192/1256.

Authors, JKP. “‘I Am Not a Statistic or a Category…By God’s Grace, I Am.” – Craig Romkema, Graduating Class of 2011.” JKP Blog, 8 June 2011, www.jkp.com/jkpblog/2011/06/art-craig-romkema-college-graduation/.

Romkema, Craig. Embracing the Sky: Poems beyond Disability. Jessica Kingsley Publishers, 2002.

Word Count: 1,787

I pledge. AJS

An Existentialist Approach to Madness

Written by Amanda Smith

On the evening of April 23rd, the last lecture of the Mysterium Hunanum Studies on Madness commenced. Presented by Craig Vasey was the series last topic: An Existentialist Approach to Madness.

Vasey started off  his presentation with the word “madness” asking the audience what does the word mean exactly, if we could put one single definitive definition to it. He explains that it’s just a word, it can cover an array of things from physical imbalances or disturbance in the mind. He further explained that it can’t be but into a single definition, he says describing the madness is like describing what love means. It’s hard to determine a significant single meaning for it. He jokes adding, “Madness is a linguist black hole.”

Vasey then goes into an overview of his main point about the research he found on Freud theories looking at literary works made by Freud’s colleague, Michael Thompson. Thompson wrote “The Truth about Freud’s Technique”where we explore the idea that there is no such thing as mental illness because it is not a proper medical condition, or as Vasey says, “mental illness is a metaphor, a mapping of medical talk and values (concerning physical suffering and its cause) onto behavior, feelings, thought, consciousness-experience” In culture today, he explains, that mental illness is just a term we have accepted. That we as a society want to make it seem that there is a cure to mental illness, that it something we need to find a solution to. But in reality, we are only helping someone who is suffering, suffer less. Whether it be throughs medically prescribed drugs or therapy. Overall, showing us that the medical field is in charge of mentally ill individuals.

To introduce the findings of Freud’s time, Vasey gave a brief background but how 1780’s the idea of moral treatment came along, a “remarkable step forward in treating such people as human beings who need help from society,”  Vasey exclaims sarcastically, meaning that instead of treating mentally ill people as criminals, entertainment, and animals, we treated them like humans that need help. When psychoanalyst started to treat these individuals they thought that the body or mind was intervened by the gods of evil spirits, had a failure to control appetites and desires, or possessed by the devil. These ‘findings’ were then resulting in private institutionalization because they were too much too handle or states were sponsoring warehousing to try techniques to control these mental ill patients. But then came Freud.

As Thompson had put it, “Freud believed people developed hysteria and neurosis because they have been traumatized by unrequited love in their childhoods. He was the first to recognize that our parents, in fact all our relationships, have on us and our capacity to love is also the source of the most profound suffering.” From then on, Freud would consider this notion with tests and therapy sessions that would, as Vasey says, reach the repressed memories or thoughts that are causing the suffering by paying attention to the patients concerns in order to help them. Vasey explained that in repression, one is not aware of the memories, and that the mind is actively working to keep those memories repressed.

Though this concept was hard to grasp for the audience, we all were astounded by the evidence found in Thompson work. Thompson wrote, that there was a woman who was temporarily blind, paralyzed, and would not drinking water and was very unhealthy due to the fact. After Freud had put her under hypnosis she grumbled about her english lady companion, saw the lady’s dog drinking out of her glass, but didn’t want to be impolite so she didn’t say anything, she asked for a drink of water, and then woke up with the glass to her lips and never was disturbed again by this experience.

From this, Vasey would explain the difficulty of a psychoanalysis. Which can be explain with the “three humiliations of human narcissism at the hands of science.” Those three concepts being: cosmological, biological, and psychological. cosmological is the past time revelation that we used to think the earth was the center of the universe and god put us there. But was it’s actually true is that the sun is the center, thanks to Copernicus. Biological humiliation was when the human race thought they were a supernatural being, but Darwin provided a different opinion, evolution. Finally, what this lecture is focused on is the psychological humiliation. We think that we are in control of our mind, but according to Freud and Vasey “you’re not the master of your own house and the ego cannot control its drives.” The mind represses things, and they may come back to torment you, but overall we are not in control.

Vasey then extend is notion, that we don’t control our thoughts, and ties in the beliefs/themes of existentialism. One of these themes was anxiety. We have so many anxieties that we repress, because we are a race that is aware of ourselves, cares we exists, and knows that we will die. Amongst these fairly important anxieties we also  carry around the question of life: what is the meaning of human existence? What kind of being is human being? We have heightened our awareness of our existence, that we developed the distractions of everyday life. Whether it be through tasks or through keeping busy with multiple activities, we absorbed ourselves in things, to keep our minds away from the anxieties, which is an understandable reaction, it’s not a mental illness, it is a part of life. Vasey calls this repression of anxieties, ontological insecurity. Vasey also briefly pointed out that we have become a generation of understanding of everyone’s weirdness, because we all have troubles.

The final conclusion of Vasey’s lecture was that Freud findings makes sense. We all really do repress our memories and anxieties, there is a subconscious we cannot access directly, and that being like this is not medically related at all, or as one student suggested, “we are all mad here.”

Major Project Workplace and Disability Game: A Riff Off of Dungeons and Dragons Game

Workplace and Disability Game: A Riff Off of Dungeons and Dragons Game

By Amanda Smith & Ben Fancher

Our project is based off of the tabletop-paper-and-dice game “Dungeons and Dragons.” The concept of the game is to roll a number to successfully perform an action that will benefit them to “survive” throughout the campaign (story plot). Characters will have modifiers that will make the rolled number go up or down depending on their skills, physical appearance, mental and social capabilities. To depicted this game into a disability lens, our four characters that will be played will vary in certain abilities, that will be observed through their skills. Our first character is Victor Frankenstein, based off of Mary Shelley’s main character of her novel, Frankenstein. He will depict an straight, white, abled-bodied, wealthy, and education male. Victor is not disabled, and will have a great advantage over all the other characters throughout the game’s campaign. Our next character is Tom Robinson, he is a supporting character in Harper Lee’s novel, To Kill A Mockingbird. Tom represents an uneducated, black-male with a shriveled left arm (from his cotton gin accident). Tom will be disadvantaged against Victor because of his race, education, and disability. Our third character is Arthur “Boo” Radley, also a supporting character in Harper Lee’s novel. Arthur is a white male that is mentally disabled with an assumed diagnosis of autism and agoraphobia. With these, Arthur will be extremely disadvantaged from Victor and Tom with certain skills. The fourth character, is The Mermaid from the Oscar Wilde’s short story, The Fisherman and His Soul. The Mermaid is a foreign female character that does not have legs and cannot walk. The Mermaid in this campaign is heavily disabled character compared to the others character because of her impairments. All our characters will be doing a campaign that will resemble every character going to their first day of work to the same office to complete the same task, their ultimate goal is to get through the day and get money. By creating these disabled characters and this campaign, our goal is for players to realize some characters will be more advantaged than others and will succeed more easily in skills to succeed in the workplace. It is possible for all characters to finish a day at work,  but for some characters the task will come easier. Throughout this semester in Disability in Literature we have learned that the abled-bodied straight, white, educated male from a wealthy family will have far easier time succeeding in the workplace than other characters who might be just as if not capable to do the job. The only thing that is holding them back is their impairments or disabilities.

Campaign Map: Newspaper Office

-Editor in Chief office

-Stairs to front

-Ramp on side

-Individual desks

-Cooperative group (desk of three)

-Conference room

-Bathroom

-Waiting area (three chairs)

Character Sheets

Campaign Outline

  1. All characters arrive to work at DisLit Times, the self-proclaimed newspaper for teens, tweens, and everything in betweens.  
    1. Characters all arrive at 8 a.m. for their first day. DisLit Times recently had a massive set of layoffs and they need new employees
      1. Introduce the players, have them introduce themselves to each other too
    2. The new Editor-in-Chief: Tom Robinson, the kindest and best man in all of Maycomb county. Recently moved to Fredericksburg, VA, with his family for this new job opportunity. Is optimistic.
    3. The new Health Editor: Victor Frankenstein. Victor left his life in Europe after a number of failed scientific experiments which he refuses to talk about. Is prepared to share his wealth of knowledge of the human body and its needs with the readers of DisLit Times
    4. The new Advice Columnist: Arthur Radley. Arthur’s life has been spent observing people and their troubles, so he is extremely prepared for his new job as the anonymous writer of the “Dear Boo…” advice column. He works from home, but, despite his protests, has to come in today for orientation and to sign some papers.
    5. The new Horoscope Writer: The Mermaid (the one from The Fisherman and His Soul). A life spent musing on life and love has turned the mermaid into the perfect horoscope writer. She is unable to work out of the water, however, so the Fisherman built her a mobile tank to enable her to go to the office and work. The Fisherman moves her around in her tank until they are able to devise a way to make the tank self-propelling in a way that doesn’t combine water and electricity in a harmful way.
  2. Characters roll a perception check as they stand at the front of the building
    1. Looking to beat a 5
    2. If characters succeed in the roll, they notice that the only way up to the front door of the building housing the DisLit Times’ small office is a staircase
      1. This is fine for everyone except the mermaid, who must try and see if there is any other way into the building
      2. Mermaid must roll investigation, looking to beat a 10
      3. If successful, the player sees that there is a ramp on the left side of the building, leading up to another entrance.
      4. If unsuccessful, other players can roll for the same check, assuming that they are polite and not, you know, unempathetic monsters.
      5. Mermaid (propelled by the Fisherman) goes to the side entrance and goes up the ramp and goes inside, while the other players go up the stairs to the front entrance
    3. Describe the Office
      1. Once inside the front entrance, Tom, Victor, and Arthur see the receptionist, Becky.
        1. Ask if they wait for the Mermaid
          1. If they don’t, start the interaction with Becky
          2. If yes, then have the Mermaid head to the front with the others
  3. Interaction with Becky begins
    1. Ask if anyone wants to approach the receptionist, who is ignoring the group of them
    2. Whoever wants to approach starts a dialogue with Becky. Becky reacts like a deer in the headlights if anyone except
    3. During the dialogue, have the characters all roll Constitution saving throws to avoid Becky’s offensive comments.
      1. Victor has to beat a 5. If he doesn’t beat it, he gets asked if he’s sick, since Victor is kind of wiry and pale (because, you know, anxiety) but if he beats it he gets asked if he is the new Editor-in-chief. Becky is very respectful and formal with him, but seems almost nervous about having to talk to the others.
      2. Tom rolls, and has to beat an 18 to avoid hearing Becky say “Oh I heard we were hiring a cripple, are you going to be working in the warehouse? The foreman can give you a tour of the warehouse, you don’t really have to come up here that much.” If Tom rolls high enough, Becky simply asks him to introduce himself to her.
      3. The Mermaid rolls and has to beat a 19. If she doesn’t Becky looks confused and asks the fisherman if this is some sort of new art exhibit that he is delivering? If the roll is successful, she simply introduces herself too and expresses concern that the office isn’t really designed to have a tank wheeled around in it.
      4. Arthur has to beat a 17. If unsuccessful, Becky speaks to him, which is bad enough, but also she inquires about his health, saying that he looks so pale. Probably would call him a pencil or something. If he beats a 17, she remembers seeing in one of the papers that the new advice columnist had severe agoraphobia and would most likely not want to do a lot of talking, and says hello.
  4. After this, the characters roll initiative. This decides what order they are shown around the office. The characters’ respective trips through the office are outlined below
    1. Before all this, Becky calls the various people who are showing the characters around the office to the reception desk
    2. Tom
      1. Shown around the office by Becky. She takes him into the bullpen and to the conference room and finally to his office. Once in the office, Becky begins asking probing questions about his injury: “Does it hurt”, “how did it happen” “Can I see it?” (Unless he rolls another +19 constitution saving throw)
    3. Arthur
      1. Shown around by the Style Editor, Gerald. Gerald is pretentious, rude, and judgemental. Unless Arthur beats a 19 saving throw, Gerald will march him through the office and ask Arthur what’s the matter with him, why is he so quiet, he should speak up if he’s a real man, all that nonsense.
    4. Victor
      1. Shown around by Susan, a columnist for the health section. Victor needs to roll a Charisma check and beat Susan’s modifier of 9. If he does, then Susan is absolutely charmed by him and is just so friendly and welcoming. If he doesn’t, then she is just professional.
    5. Mermaid
      1. She is shown around by the Style Editor, Thomas, who sort of doesn’t know what to do with her, since the tank can’t really be pushed around the office completely safely. (character will do various Dexterity checks to see whether or not the tank is able to get through the office without bumping into anything). Thomas is quiet and polite and helps the Mermaid as much as he can. If the Mermaid succeeds on a Charisma persuasion check of 17, Thomas tells her about how, when he was younger, he had braces on his legs to straighten them out, so he knows how hard it is to get around.
    6. After the four characters are shown around, they are given their paperwork to sign. While the characters sign paperwork at their desks (Tom in his office, Victor at an Editor’s desk, The Mermaid and Arthur in the conference room) the have to do Charisma Intimidation checks to see if Susan and Gerald are going to come up and bother them or not. Victor has to beat a 7, everyone else tries to beat a 15.
  5. Once all the paperwork is done, everyone can give it to Becky to send to HR. All of our characters are now free to get to work.

Tessa Fontaine’s Reading on “The Electric Woman”

By Amanda Smith

The book trailer of The Electric Woman

On April 5, 2019, Tessa Fontaine created a wild and crowded audience in the William Street Mansion. Tessa Fontaine is an internationally published author who wrote a nonfiction book about her life on the road with America’s last travelling circus and the parallels of fear and horror that her mother faced when becoming paralyzed from massive strokes. On this evening Tessa would be making a quick stop on her national book tour, a year after being apart of the circus.

Her book is titled, “The Electric Woman”. Mrs Fontaine had come to UMW to read a few of her favorite sections of her book. Her first reading was the book’s prologue. When reading this section, Tessa drew in her audience with her with the tone of her voice. At first, her words were playful and humorous while telling the audience that she had googled sideshow acts and lied to her boss about what she could do acts such as fire eating, sword swallowing, and snake charming.

She went on to explain later in her next reading section that she would learn how to one of the things she told her boss she knew how to do, fire eating. When telling this compelling story she said that during the days leading up to her fire eating class she was hoping that fire-eating was just an illusion, that you didn’t really have to put fire into your mouth. After taking the audience through a vivid experience of learning how to smother a fire burning on human legs and arms to the burning, charcoal taste of fire burning her tongue as she put out the flame in her mouth. Tessa suddenly deepened and darken her tone as she placed emphasis on the line “the trick is that there is no trick…you eat fire by eating fire.” I do believe that by saying this she had told the audience the central theme of her book. That she really meant to say, there are no shortcuts or easy streets in life, you just need to go through life and do it. Circulating around this idea, Tessa had introduced the character of her mother and how she went through a series of massive strokes which left her paralyzed, speechless and left her with symptoms of short term memory loss. Her mom would become dependent solely on her and husband, Davey.

Tessa explained that Davey and her mom would set out for a trip to Italy that they have been waiting a long time to do. Tessa had thought the worst, that her mom was taking an extreme risk with her health and that she would facing death right in the face. Which to Tessa had influenced her decision to join the circus. Tessa answered an audience member’s compelling question, “Why the circus? Why not something else?” to where Tessa would explain that she joined the circus because it would be dangerous. Then she would be facing her fears, just like her mom was or as Tessa put it briefly, “I was building intimacy with something that I feared” Another audience member had asked, “how did you deal with your mom?” Tessa replied hesitantly, “It was devastating. Having a wonderful humans body fail and not be able to do what its suppose to takes its toll, especially since you’ve seen the vibrant person they used to be.” Tessa went onto a more light-hearted section of how her co-workers taught her how to swallow a sword and that, just like eating fire, “you just had to untrain your bodies natural instincts to chose and hurl, and just shove a knife down your throat.” as she put it.

I believe her reading highlighted the most important idea of her novel. That you need to go through life with every intention of knowing how dangerous it is, and also learn that you’ll need to endure with some amount of pain along the way. There is no trick to life. But the best way to live through it is to just do it.

Theresa Steward’s Lecture on “Musical Interpretations of Love and Madness in the Persian Epic Leili o Majnun”

Written by Amanda Smith 

On the afternoon of March 19th, I had attended Theresa Steward’s lecture from the Mysterium Humanum series on madness. Her topic of discussion was on “Musical Interpretations of Love and Madness in the Persian Epic Leili o Majnun” (translated as Layla and Majnun). The main objective of Steward’s lecture was to look at the story of Layla and Majnun and compare its meaning of madness with its modern musical interpretations. 

“Love is greater than madness.” A painting of Layla and Majnun

To start off the lecture, Steward went over the story’s history and plot. Layla and Majnun story is known as the “Romeo and Juliet of the East”. It traditional epic story was written by Nizami, a poet from the early 12th-century era. The story is placed in 7th century Bedouin, Arabia were two lovers meet. The story begins with the meetings of a beautiful women Layla and a man named Qays. They meet in school at the age of ten and since that moment they have been in love with each other- so much that they believed that touching one another is not needed to know how much they love each other. One day, Layla’s parents prevented Layla and Qay from seeing each other and even arranged a marriage for Layla. From the torture and toil of not being able to be with Layla, Qay had become Majnun (which translates to madness, crazy, mad). Now, Majnun escapes to the desert and becomes a hermit who gives up all of his earthly possessions- like his clothes- and vows to not eat or hunt animals, he states that he has “eaten the eater.” At the end of the story Layla becomes ill and dies, then Majnun visits her grave and dies laying on it (it is assumed that died from heartbreak). As a result of death, Layla and Majnun are united in heaven and live happily ever after. From this story, Steward gathered that this is more than a simple tragic love story. 

Steward stated that the story represents Sufism. Sufism is the religious belief that finding divine love will transcend an individual and awakening the true spirit into divine madness. To transcend, one must take their soul on a journey towards God, annihilate one’s ego, and transcend earthly desires. Looking at the story of Layla and Majnun, Majnun can be seen as a character who inherits divine madness. With his isolation in the desert, his support for animals, his “letting go” of ego, and his unconsummated love with Layla, he has fulfilled each stage of transcendence. Because of this, God has brought them together in heaven with their immortal love. Steward stated that Sufism shows that divine madness is known today as mental illness. With this evidence, Steward surprised her audience with a completely different interpretation of the divine love story shown in music.

Steward first introduced Hajibeyli’s Leyli and Majnun Opera. First performed in 1908, the performance tells the story through the orchestra, choruses, and individual vocals. The vocals, however, are presented using mugham (a traditional vocal improvisation). Reflecting on this Opera the orchestra shows madness with repetition of the chorus “Night of Separation” in different tones. These tones change along with the visual tethering of clothes and progressive weakness in the character portraying Majnun. What this Opera doesn’t show is the divine love and madness within Majnun in the end. Instead, they show the tragedy of mad love with the abrupt ending of him dying on her tombstone. This opera is still performed today but still has not changed its meaning. Therefore, showing negative affliction. So does it ever change? 

We ventured on into the modern interpretations of this story and found one piece from 1992 named “Song of Majnun” by Bright Sheng. Instead of a tragic love story, the meaning is twisted into love and suffering after being separated from one’s homeland. Sheng was, in his youth, exiled to Tibet, to where he escaped to the United States to become the composer he is today. His composition introduces instrument and voices that create the sounds of a “mad men” by using Greek chorus (two people gossiping to narrate story), dissonance (ugly sounds that don’t go together), and shifts in meter, and repetition of words, Sheng produced what can be interpreted as a sense of madness and the experience of an unstable mind. “Though this not exactly divine madness, it is as close as we have gotten. 

In conclusion, she stated that western civilization stigmatizes divine madness as a negative affliction and descent towards madness, like a descent towards hell. Whereas divine madness is actually a positive journey and an ascension upwards towards the divine. She exclaims that the story is not a tragedy but a happy love story, and is waiting for someone to tackle the story from this angle, musically!

Amanda’s Response to Joy Harjo’s “The Woman Hanging from the Thirteenth Floor Window”

In Joy Harjo’s poem, “The Woman Hanging from the Thirteenth Floor Window”, the author portrays an unnamed female character contemplating to commit suicide by falling off the thirteenth floor of a tenement building in East Chicago. Looking at the poem through a disability lens, a crucial key passage shows the character’s feelings in the environment around them at present, morph together to create a person that is struggling with decisions of suicide and severe depression. The key passage is as follows:

And the woman hanging from the 13th floor window

          hears other voices. Some of them scream out from below

          for her to jump, they would push her over. Others cry softly

        from the sidewalks, pull their children up like flowers and gather

         them into their arms. They would help her, like themselves.

        But she is the woman hanging from the 13th floor window,

          and she knows she is hanging by her own fingers, her

          own skin, her own thread of indecision. (l.41-48)

The author states that the woman can hear voices from below. Some call “for her to jump” and some say they will “push her over” to her death, while others “cry softly” and pled that they “would help her” (l.43,45).  These people at the bottom can be interpreted as the able-bodied people of society and their reactions to this woman’s disability. On one hand, people are condoning her suicide because having a disability a hardship or a difficult for which helping her end her life might be a way of escaping that burden. As the author addresses, “She thinks she will be set free” (l. 7). On the other hand, there are people who see her suffering and are compassionate. They are supportive and want to help her. When they say “they would help her like themselves” (l. 45), it could the interpreted as those in the community who suffer from disability if not from depression like the character. Whether the people want her to jump or not, it is still not their decision in the end.

  Towards the end of this passage, it is stated “but she is the woman hanging from the 13th-floor window” indicating the decision to end her life or live with her depression is ultimately up to her, not society, she is the only one hanging from the window. With the lines, “she knows she is hanging by her own fingers, her/ own skin, her own thread of indecision” (l. 47-48) The character understands that it is not the effects of the society below that are hanging her in the balance of her indecision, it is her own fingers, her own choice to allow her to fall or not. It goes to show that the disabled individual or any disabled person has the capability to make the decision for themselves, not anyone else.   

Overall, this passage put to questions some aspects that can be applied to disability studies, these being the concept of society’s influence on the disabled individual and the capability of a disabled individual to make a decision for themselves.

Works Cited

Harjo, Joy. The Woman Hanging from the Thirteenth Floor Window, 19 Feb. 2019, www.amerinda.org/newsletter/13-3/harjo.html.

Word Count: 524

The Flag of Imagination: The Surrealists and Artists on the Schizophrenia Spectrum​

Written by Amanda Smith

            During the afternoon of February 19, I attended a lecture from the Mysterium Humanum series on madness, titled “The Flag of Imagination: The Surrealists and Artists on the Schizophrenia Spectrum”. Presented by Dr. Julia A. DeLancey, was this fascinating talk about Hans Prinzhorn’s  1922 study of Schizophrenic spectrum patient’s art work and the surrealism era of the 1920-1930s. 

            Breaking down the title of her lecture, Dr. DeLancey wanted to first introduce \what disability studies is. Her definition was simply stated as socially constructed and performative; how society constructs disability. She allows explains the three main categories a disability can be seen as: medical, social, and interdependence. Medical is the physical impairment one has (paralyzed), whereas social is the how environment effects the individual (stairs are a problem), and interdependence refers to need for assistance. The disability she focuses on is Schizophrenia spectrum. Which is when an individual has poor executive function, thought disorders, psycho-social factors, and hallucinations. 

            Working towards the other section of her title she introduces the start of surrealism. Dr DeLancey remarks the World War 1 plays a major role in how surrealism starts. During World War 1, soldiers that fought in the trenches were coming back with significant psychological trauma. During this time, Sigmund Freud was developing his form of therapy, called psychoanalysis. This form is believed to delve into the subconscious and unconscious mind, the sources of all problems or traumatic experiences, which was a major focus to surrealist.

            The founder of surrealism, Andre Breton, was a war veteran who saw shell shock first hand, it was in1924 when Brenton writes his manifesto ( his statement of beliefs) of surrealism, a movement that will reconcile two different realities (the real world and dream world, the world in between those being surrealism) which can be accessed through things like hallucinations and visions. Surrealist took a page out of Freud’s book by trying to access surrealism in the mind by doing “waking dreams” sessions and automatism drawing and writing (where a person draws or writes without thinking about what came to them). It was only then when theorist and writers began to explain that there are only three types of people that are truly creative: Children, people from primitive cultures, and people with mental illnesses. As Brenton had put it, “I could spend my whole life prying loose the secrets of the insane. These people are honest to a fault, and their naivety has no peer but my own.”

            After explaining these two main concepts (Disability and Surrealism), Dr DeLancey excites us with the bulk of her research on Hans Prinzhorn’s 1922 case studies. Prinzhorn, in his time, had training as an art historian and experience in psychology. Later in his life, he began working in a psychiatric clinic in Germany. The patients there created many pieces of artwork that doctors examined so they could diagnose the patients. Prinzhorn inferred with the notion pieces were art-worthy studies. Prinzhorn then began to conduct his research on ten different patients in this clinic where he would find common traits such as expressive, playful, patterned order, symbolic system, obsessive copying, and ornamental elaboration. 

            One patient, Agnes Richter, had the whole room jaw dropped. Agnes was a seamstress until her family committed her to the clinic. She then began her project on her straight jacket embroidering her file number, statements, feeling, and thoughts. Dr Delancey told us that her doing this was a way for “her words to touch her”.  The audience identified that her artwork was a form obsessive copying of her words. 

Agnes Richter’s straight jacket

            Another patient Prinzhorn studied was Adolf Wolfli, who was hospitalized most of his adult life due to mental and physical abuse. Wolfli had to different types of artwork he created, his bread art and his book art. In order to do his book art, Wolfli would create small individual pieces of his work such as collages of labels, pictures, and recipes to sell. After he sold enough, he would put the money toward materials for his book art. One piece we examined was his bread work, titled “Saint Mary Castle Giant Grape”. This work was identified as elaborate ornamentation, pattern order (orange bubbles color-pattern), and playful (The hidden faces). 

Saint Mary Castle Giant Grape by Adolf Wolfli

            During the 1920s, people believed that those with mental illnesses had the true creativity to create surrealism art. Based on Hans Prinzhorn’s case studies, it can be observed that his patients can create art work based on their pure imagination. It was unclear if in fact the patient’s art was based on the this “in-between” surreal world they could be in, but looking at the characteristics of schizophrenia such as hallucinations, it can be interpreted that these patients have the ability to access pure imagination and portray it in an art form. 

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